I suppose I will get used to writing these posts eventually. About the time I get used to them then something will have changed and it will be time to move on and to start another post.
One of the things I hope I never get used to is to write to each of you readers as a reader and not as a nameless and numberless person out there. I want you to believe that I am writing to you and that I am concerned about what you have to say about me and that I am concerned about what you do not have to say.
As time goes on I am sure that the number of writers out there that read this will diminish and eventually falter. That will be fine. I'm not writing it on their behalf either. I'm writing it for the few of you that will want to hang on and to explore this disease that I have for now. We will explore it up and down and in and out and all around. We will take it inside to see what is happening there and then outside to see what is happening there. We will take it to all of those places and maybe to some we haven't even thought of to explore it there!
How do you take a disease like glioma blastoma and talk about it in all of those cases as relevant and meaningful and important to me here as a daily person writing about it? It has a name. It has an unknown cause. It has multiple scientific facts about it. But perhaps the most common multifacet that it has is that it is generally not understood. It could be starting from nothing. It could be starting from something that was not meant and becoming something that is meant. It could be starting from something that was meant to be and is still not apparent. What is that?
Nevertheless, while one of the posts of this series will have to deal with its own history, or more posts, many of the posts will deal with other things about its history and consequences that I won't have the slightest understanding about. I'll just deal with them as best I can and then pass them along.
That's all for now. Hope you have a good day.
Check back later for more writing in case the spirit moves me.
God bless,
Wade
Wade-I must say based on personal experience, the more you know about your disease, its progression, the treatments, all of the whys and what fors,truly makes it less frightening and maybe not so overwhelmingly powerful!
ReplyDeleteMy personal experience in no way compares to yours, however I would encourage you to find a support group of people who have the same disease-Internet is great for this if you cannot find a local group.
I Know you have a wonder family , and the members of the church as support. But none of them really understand what and how you are feeling with your disease. A chance to talk with someone who 'knows' is one of the most beneficial things for you- It won't change any outcome but knowing you are not alone, knowing another feels the same frightening, angry, bitter disappointed feelings is a big, big help.
Laurrie
Thanks Laurie. That is a great suggestion. It did cross my mind once and then escaped it. Now hopefully it will stay.
ReplyDeleteThanks again!
Wade